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罕見疾病

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罕見疾病照護服務計畫

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  • Last updated：Last updated：2024/10/15
  • Publish date：Publish date：2020/07/29

國民健康署自106年12月起辦理「罕見疾病照護服務計畫」，委託專業團體於取得病人或法定代理人同意後，提供罕病病人及其家屬有關照護諮詢、說明疾病影響、心理支持、生育關懷等四大面向核心服務，並協助對外連結社會福利及民間病友團體等資源。

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Update : 2025/05/01

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